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Just a note that there is a valuable upcoming webinar about rare disease research registries. This Wed., Sept. 15th at 2 EDT you can learn about software tools from companies like RemedyMD that are accelerating rare disease research. These registries bring data from any source together to be searchable across the board for overlooked correlations. And they offer a great patient portal for self-reporting data. They just signed up the National Fibromyalgia Association. Read more at https://www1.gotomeeting.com/register/395085313 |
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